Letters to my Grandchild

I've seen you every day since I've been back and I'm amazed at how comfortable you are with the cast and how well adapted you are. You are a little frustrated at not been allowed to turn over or pull yourself along but if we keep you occupied you smile and laugh and sing and play. I spend a lot of time pushing you around the garden in your pram and you enjoy looking at the tress, the flowers, the birds and butterflies. You are just amazing and I think you have your father's spirit and your mother's strength. One week has laready passed and perhaps in two weeks time you can have a lighter cast put on the leg. Today your Dad to Mom to a movie at the Pav and I got to be with you for a few hours. We walked around the garden, played on the acitivity map and played "Where's Emily?" by hiding your face behind a blanket. When Mom and Dad got home you were just finishing your bottle and then with just a short walk outside you went to sleep. Your Dad is going...

Hello Em, I arrived home from walking (and volunteering) in France and Spain this afternoon at about 3pm. Finn and Patty came to meet me at the airport. On the way home, Finn gave me the really sad news that you had fractured your right tibia on Friday. I was really tired from the three flights home and at first I couldn't take it in. "When?" I asked. "How did it happen?" We were all so relieved when the specialists, Dr Roos and Prof Beighton, said that there was no indication of OI in your Xrays. Just a couple of weeks ago they took you to Dr Roos for him to check your skull because the clinic sister thought your head was a little large. You had a scan done but there was nothing abnormal. Dr Roos told Mark and Tammy not to worry about your blue sclera "Children can have blue sclera up to 2 years of age" he said. I was away at the time and I must be absolutely honest with you Em, I heard alarm bells ringing. Large head, blue sclera and recurrent c...