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Showing posts from November, 2009

Another treatment

Hello Em, You came out of hospital today after being in 3 days for your Pamidronate treatment.  Mom and Dad took you in on Friday morning and Dr Roos put the port into a vein in your head straight away this time. Last time you went in for treatment, they did the infusion for 6 hours every three days.  This was going to be done every three months.  But, your Dad is really on the ball!  He got hold of the Protocol from Shriners Hospital in Montreal where a Dr. Glorieux pioneered the use of bisphosphonates to treat children with biophosphonates.  The protocol is to give small children (like you) smaller doses more frequently so Mark gave this to Dr Roos and now you will go in every two months and have the treatment for three hours not six hours every three days.  You screamed the place down when he put the port in - which is exactly what I would do if someone tried to push a tube into a vein in my head.  But, once the port was safely in you settled down and when we got there to visit yo